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Introduction to California End of Life Option Act

The California End of Life Option Act went into effect on June 9, 2016. This law allows a terminally-ill adult, California resident to request a drug from his or her physician that will end his or her life. People who choose to end their lives this way, and who carefully follow the steps in the law, will not be considered to have committed suicide. Physicians who prescribe the aid-in-dying drug and follow all the steps of the law, will not be subject to legal liability or professional sanction. Participating in this end-of-life option is voluntary for both patients and physicians.

Who can use this option?

To receive the aid-in-dying drug, a person must:

  • Be 18 years or older and a resident of California
  • Have a terminal disease that cannot be cured or reversed and that is expected to result in
    death within six months
  • Have capacity to make medical decisions and not have impaired judgment due to a mental
    disorder
  • Have the physical ability to take and ingest the drug

How does a patient obtain aid in dying?

In brief, the steps that the patient and physician must complete are as follows:

  • Patient must make three requests for the aid-in-dying drug to his or her attending physician – two orally (at least 15 days apart) and one in writing on a special form that is witnessed.
  • Attending physician must be willing to prescribe an aid-in-dying drug and must make sure the patient legally qualifies.
  • Attending physician must explain all end-of-life options to patient, encourage patient-family discussion and review what it means to ingest an aid-in-dying drug.
  • Patient must discuss the decision with his/her physician without anyone else present (except an interpreter, if needed) to make sure the decision is voluntary.
  • The patient must see a consulting physician who confirms the terminal diagnosis and that the patient is qualified to receive an aid-in-dying drug according to the law.
  • If the patient has a mental disorder, he/she must be evaluated by a mental-health specialist to make sure his/her judgment is not impaired.
  • Before writing the aid-in-dying drug prescription, the physician must discuss with the patient how to store and administer the drug; patient is given a chance to withdraw his/her request; patient is encouraged to enroll in hospice; and the patient signs consent form for the prescription to be sent to the pharmacy.
  • The patient or another a designated person retrieves the aid-in-dying drug from the pharmacy, receives additional education on drug usage and stores it appropriately until used.
  • After signing an attestation, the patient ingests the drug according to the instructions; the drug must be ingested while in a private place with another person present.
  • Any unused drug is disposed of appropriately.

This is just a brief description of the steps. More detailed information on each step can be found on UCLA’s End of Life Option Act: Resources and Materials page.

 

The End of Life Option Act at UCLA

People come to UCLA for innovative treatments for advanced disease. The more advanced the illness, the greater the importance of ensuring that patients’ goals guide the treatments they receive. This ensures that the most intensive treatments aim to achieve an outcome the patient desires, and it also means nimble re-orientation toward comfort-oriented treatment if the prognosis worsens and focus sets on a different set of goals. This requires in-depth, deliberate conversations between patients and their physicians. These conversations must include the possibility of aiming for comfort, palliative care and the value of hospice. For patients receiving intensive treatments for advanced illness, as well as for those focusing on comfort, UCLA aims to enhance the experience of patients and families toward the end of life. This means exploring meaning, coming together and making the most of this final phase.

For some patients, having a terminal condition means wanting to take control. At times, symptoms or suffering might become overwhelming. UCLA Health aims to ensure that symptom management and supportive care are always a priority, although we realize that in rare cases medicine’s ability to control suffering might be overmatched. Under these unusual circumstances, the End of Life Option Act permits a willing physician to respond to an eligible patient’s request with a prescription for an aid-in-dying medication.

At UCLA, our process also includes a clinical consultant who works to fulfill the patient’s request while at the same time ensuring that UCLA is providing the best possible treatment and affording the patient maximal support for the best experience at the end of life.

If you are a UCLA patient, ask your physician about your treatment options. Your UCLA physician is dedicated to making sure that your treatment matches your goals. If you have questions, you also can call the Simms/Mann–UCLA Center for Integrative Oncology at (310) 794-6644 or you may call UCLA Care Coordination at (310) 267-9702 and indicate your interest in the End of Life Option Act.

For more detailed information on each step, required forms, step-by-step guidelines for patients and healthcare providers, or more background information on the Act itself, please visit UCLA’s End of Life Option Act: Resources and Materials.

 

 

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